A game that I created and play to keep myself motivated and moving forward.
How to improve you organizational skills and become more productive.
We are raised to do "The right thing" without understanding the mechanics of it: how does this work?
In this article, the goal is to share how to live successfully while living with a disability. This involves systems.
Have you struggled to be understood when talking about complex subject matter? It should be pretty easy to understand when we are talking about the same things. But are we really?
How to collect and keep everything organized to assist in a diagnosis.
What to do with advice given, and learning to spot if the advice given will work for you.
There are several types of pain. When most people think of pain, they think of a headache, sore teeth, broken bones, arthritis, or maybe even a sprained ankle. Pain is pain, and it typically doesn't feel very good to be in pain. Nerve pain is another type of pain.
This article will focus on possible symptoms and test for nerve pain.
This is the first part of a series of articles on the Sjogren's Syndrome Foundation (SSF).
I will let Steven share his own thoughts on the efforts of the Sjogren’s Syndrome Foundation.
Advocating for new medications and treatments
When a person receives a diagnosis of Sjogren’s Syndrome, there is often a lot of fanfare by the doctor in determining whether a person has Primary or Secondary Sjogren’s Syndrome.
There are people who live spending a lot of time scratching. What can cause it and what can help?
Why do itching, and other different symptoms seem to show up at the same time?
Most people reading this just want help. So here are some strategies that have helped myself and other people living with chronic itching.
The summary of this article is that there are drugs that work on certain conditions by drying people out. As people with Sjogren's Syndrome, we need to be aware of this.
When all else fails, and the pills and medical treatments stop working or don't work, many people try to change their diets. Why?
Sjögren’s Syndrome is one of the most common autoimmune diseases, but also one of the least known by doctors, and can be difficult to get a proper diagnosis.
What exactly is brain fog and how do we deal with it and make it better or make it just go away?
Brain fog can have many causes and possible solutions. Here are some of the causes and strategies that I have used over the years to get to where I am now.
You can have more than one autoimmune condition: Many of us that have an autoimmune disease do.
Most people understand tiredness and fatigue to be the same thing, but are they the same thing? To the people who live with chronic severe recurring fatigue there is a big difference.
In the first part, we went through what fatigue is and how it can present in a person who has an autoimmune disease or condition that causes fatigue. In this article we will discuss some possible treatments and strategies that may help.
Why are some people wide awake at night and fighting to stay awake during the day?
In this part of the series, I will discuss what a sleep disorder can look like for a person who is living with a chronic disease.
This article contains strategies that I and other people have used to cope with the effects of living with a sleeping disorder from a chronic disease.
Are all anxiety issues caused by underlying medical issue? No. Everybody will experience some form of anxiety at some point in their life.
So, what does Anxiety really look like?
An article on different strategies and treatments for Anxiety.
This article will focus on possible causes of nerve pain.
Living with neuropathic pain can be very difficult. There are various degrees of nerve pain and what works for one person may not work for another. But, what works?
While medications are typically one of the first choices for neuropathic pain, other approaches can help too.
Changing your world and those around you through advocacy. My story.
In this article, I will share how we do this: how to advocate for others and for yourself.
I assumed that it was stress, anxiety, diet, and maybe I just pushed myself too hard, but then it started happening more and more.
In this article we will talk about what dysautonomia is, symptoms, and what diseases can go along with it.
What kind of specialists do I see, and what treatments are available for Dysautonomia?
This will be the first part of a series of articles focusing on different types of pain, as well as strategies to better deal with pain, and much more.
This is part two of the series on living with chronic pain. This article is about Surviving Chronic pain through goal setting.
A Pain Management Clinic employs people who specialize in treating pain. It is all that they do
I've been asked why I would even bother taking these medications when the pain will just return anyway
I'm off to see the doctor, and I just want to be heard.
This is the second in a series on how to better communicate with a doctor and to be heard and understood
I'm about to be without a doctor. What do I do?
Often starting with a new doctor can be as challenging as being in a new relationship.
I found out that I was going through physical reactions to autoimmune disease.
In this second part of a two part series, I will share strategies that have worked for me with dealing with the weakness that comes from dealing with chronic illness.
I learned this week the source of my pain that couldn't be explained through normal tests.
There are a lot of people living with so many different types of skin disorders and rashes. This article will focus on my experiences and hopefully help others through it as well.
Is there a long term strategy for people who have chronic recurring infections?
After running out of traditional medications to try, I ended up taking a group of medications called Biologics.
What is IVIG? It is a short from for Intravenous immunoglobulin.
When I grew up, we occasionally heard stories of people with arthritis. They were typically someone's grandmother or grandfather, and all of the ones I knew had curly gnarled fingers.
We do not need to be afraid, but it helps to be informed.
It can be difficult to secure disability or apply for a disability tax credit when you are living with a disease that affects you on a daily basis.
This article will focus on securing the right doctor to fill out your forms for you.
This is the third part of a multi-part series on qualifying and applying for a government Disability pension/benefit or Disability tax credit.
On May 12, I was filmed as part of a future miniseries. It all happened pretty quick.
Dude's Hope System: Written as a system build article as compared to a blog
Most people think of burnout as a result of stress at work, but burnout can even effect kids and teens.
What does burnout feel like? People talk about it, but it's not always clear if it is burnout, or if it is something else.
People with medical disorders can often experience burnout. I have met very few people who live with a complex disease who have not experienced some form of burnout at some point in their life.
A person struggling with burnout often struggles with their identity. They struggle with self-esteem, making decisions, and even trusting themselves. There is hope.